Thursday, April 20, 2017

April

Anthony is going to be 12 in two months! Crazy!

He is doing okay, he is hitting me less, which I think is a combination of him improving and also me not being around much.  I've been working a lot and busy with the girls stuff so we haven't seen each other too much.  He has been getting out a little bit more with his respite girlfriend, the weather has been better, they've been swimming and going to parks.  I wish he had more time with her, or with someone, but it's an imperfect system.  Even though his place pays pretty well, we can't find anyone to do this job.  He should get 12.5 hours a week of respite and we are lucky to use six.  We are trying, but it is trying, too.

Last night I took Maria and Felicity to Maria's first baseball game.  I was talking to this other mom, who also has four kids, Boys 13 and 11 and girls, 7 and 5.  This mom was saying how she is such great friends with other parents from school, how much stuff they do with other baseball families, which just makes sense, it seems, because their boys have played baseball together, been together a LOT for six months out of the year for the last seven years.  I was thinking how nice that would be, to be social and friendly with people because you have things in common, things that your kids do together so you do them together.  We just don't have that and it's too bad, because I really have always enjoyed being friends and social with people.  I don't think Mike cares as much but it feels really unnatural to me to not be friends with people.  It's a strange situation.

Anyway.  Anthony is going to be doing this bike thing this summer and you have to buy a bike, so I am going to ask people who would give him a birthday present to contribute to his bike fund.  I am looking into how much it costs, I have so much to do, it seems, recently.  I'll be glad when the girls are done with school and we can relax a little, ha ha just kidding!


Thursday, March 02, 2017

I Can Shine

Yesterday, Anthony's longest with him therapist (I'm trying not to say oldest), Pam, was saying how far we've coming.  Remember when he was lying on the ground for HOURS a day yelling and screaming? Look how far we've come! It made me feel really good, because we have come far.  Even though it stinks that he is pushing me and hitting me, it won't last forever.  I HOPE.

I just signed Anthony up for this biking program this summer, I am SO hopeful that he can learn how to ride a bike! Say a prayer it works, I really think he'd like to ride a bike!

Wednesday, February 15, 2017

February

There must be something nice to say, right? It can't be all bad.  We got Anthony some boots for Christmas and they fit but he kind of hates them.  We have to move him into some shoes that aren't Crocs, because he was barely putting his foot in them, it's winter, etc., you know, things were just bad with the shoes.  So.  I got him these boots and they were okay but not great because he'd wear them and 'tolerate' them at Little Star but he'd always pull his foot out of one and sort of walk on the sides of his feet and I was worried he'd trip.  Elizabeth, his respite girlfriend, took him to try on sneakers on Saturday and although we didn't end up going with the pair that she bought we were able to find a EXTRA WIDE (4E!) size nine pair of sneakers from Penneys and he is wearing them today.  So maybe that will be good.  I want him to be comfortable but he also has to wear shoes of some kind!  So I hope it works out.

He's in a good situation with speech and occupational therapy.  They each see him separately and then co treat for a while every week and it seems to be going well.  I like both of his therapists and they send me an email every week to say what they are working on.  His speech therapist is the same as Veronica's, and he has speech on Tuesday and her Wednesday but she REALLY didn't like me talking about Anthony on her time so now I get an email and everyone is happy.  Happier.  Ha!

My Uncle Leo send the kids gift cards for Christmas, and my Uncle Kevin sent money for them so we got some new clothes for Anthony, some long sleeved shirts and they are really cute.

He can be very affectionate, he does this thing where he holds and caresses your face.  He does it to me, Mike and sometimes to his therapists and it's very endearing.

Elizabeth, his respite girlfriend, is very nice and things have been going well.  Because I am making a positive spin on things, I won't mention that he threw his iPad out the window this weekend when he was out with her and we lost it forever.  Live and learn, I guess, we should have told her to keep the windows shut, especially if he is in the back, ha!  I have a nice and sweet old friend who emailed me and asked me if she could send us a gift to contribute to the new iPad.  We are okay and I told her that, but that really puts a positive spin on it, right? Isn't it nice how someone is always there to be nice and wonderful?

Here's some pictures.





Wednesday, February 08, 2017

Aggression in Autistic Tween

I am hoping this blog post will get me some help.  Anthony is 11 and he has lately started to really really push and punch me.  He punches and pulls my arm when I'm driving, most alarmingly and then today he slapped me full on in the face.  I have never done that to him, he has never seen that kind of behavior.  He doesn't seem upset, he seems intent on doing it.  I used to think it was a communication issue but now he doesn't seem to want anything, except to hit me! We are asking for help from his team at LSC and we are trying to work with his Occupational and Speech Therapists but so far, it is only getting worse.  It is only happening to me, which is terrible luck because I usually go get him from LSC.  Anything I search up, as Maria would say, seems to indicate my only option is to drug him but that doesn't seem like an answer.  If anyone has any real, solid experience or ideas, I'd appreciate it.  Also if anyone has any ideas about .. .what do you call it?  Sleepaway places? Nursing homes for children?  Just to type it makes me want to jump out the window.  Residential homes for children with autism, I guess.  To close, help! I need help!