Wednesday, September 17, 2014


Epilepsy is worse than autism, if I am giving these conditions grades.  Here's what I wrote about our weekend on Facebook:

Did I say Anthony spent the night in the hospital Saturday? He was in the middle of a seizure when Mike went to check on him, so I raced home from work so he could take him to the ER. Mike gave him the stuff to break the seizure, but LORD that creates a real Weekend at Bernie's situation getting him into the car. Anyway, the boys spent the night in the hospital as Anthony had another seizure once they got there, and I spent the night with Felicity, who had pneumonia and an ear infection, both undiagnosed until Sunday. In other news, Maria and Veronica are a-okay. **knocks wood**

Poor Mike!  He had the worst of it, I think.  I think about him going up and checking on Anthony, expecting to pull up his blanket and go off to bed himself, and then he finds him, in the middle of a seizure and covered in vomit, ugh.  I mean, I'm sure it's hard on Anthony but I think he is unconscious for most of it.  I would like to be unconscious for LOTS of my life, ha ha boo hoo.  

We adjusted his medication again and now we are just ... waiting?  I guess?  Then he'll have another seizure and depending on what is going on when it happens, we will take him to the hospital or call an ambulance or some thing.  We have to take him to the hospital because it's so awful when it's happening, they last WAY longer than five minutes, and the last two times he has had a seizure and we've taken him to the ER, he's had another one there.  This begs the question, if he has a seizure at home and we give him the valium to break the seizure and then he has another seizure, do we ... give him more valium?  At the ER they give him Ativan on the second one and we don't have that although I wish we did, ha ha boo hoo.because I would take some!  Lots!  

He is really acting crazy lately.  He gets home from school off the bus at 3:50 and - like today, he comes in and I try to have toast ready for him, but he ate eight pieces of toast, dragged a chair over to the cabinet to try and eat the butter in the dish (he didn't succeed today, but he did yesterday), he yells and screams in Felicity's face while she is trying to gain a little solitude in her Princess tent, it's crazy time in Crazy Town.  Maria and Veronica are all up in my grill, can they go to the neighbors, WHY can't they go to the neighbors, WHY do they have to wear shoes, Veronica can only find one shoe, on and on  and on and ON, and it's only one hour until Mike gets home and it feels like ten, seriously.  

Mike and I are both sick with colds, probably from exhaustion because we were both awake most of the night Friday and Saturday.  Then last night we went to bed and I woke up in the night, 2:45, because the stupid light turned on.  We have one of those lamps that you just touch it and it turns on and I guess maybe my brother walked by and the vibration made the light turn on?  Good Lord.  It's almost too much.  When, I wonder, will it be too much?  How will I know?  When I wake up in the loony bin?  

Also, he gets a Communication Sheet sent home every day and it has smiley faces/unsmiling faces for morning, afternoon, and ... some other part of the day.  Today nothing was circled and it said "Anthony climbed on tables all afternoon".  Um, is that communication?  I hate that he is at that damned school and just because it's not that bad doesn't mean it's good.  And he has fall break in like three weeks, one week off, and I'm trying to get him to call full day at his old place but it's First Come/First Served and I may have asked too late so maybe he won't be able to go?  I am dreading it, believe me.  

I wish I could have some good news.  Maybe next time!  

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